-
A Change of Plans
The last time I have shared a post, was back in August. Since then, its felt like a year…..at least. Roslynn has been doing AMAZING in school! We knew that she was extremely smart, but the time it has taken her to grasp concepts (and retain them), has really surprised me. Because our school district’s…
-
Evaluation Day
Evaluation day in Baltimore for a diagnosis of Sturge-Weber Syndrome…..or was it? Follow us on our mini-trip down I-83 to Baltimore, MD where we receive some interesting news about Greyson’s condition.
-
Helmet
In the spring of 2018, Greyson was written a prescription for a fitted medical-grade helmet, to keep his head safe from the headbanging he does. In 2018, his headbanging was minimal- typically only when he was mad or upset about something and it didn’t last very long. Fast forward to December 2019 and his minimal…
-
A Bounce to Remember
Derek and I wanted to have a birthday party for Greyson, but had very little time to plan one. We searched around places in the Lancaster area that would host a small party (just immediate family), where Derek and I would have little responsibility to set up or clean up. We knew it would also…
-
639/1095
Hard to believe that exactly three years ago, my amazingly special little boy was born. 5:03 pm, Greyson graced us with his tiny body and big personality. My birth experience with Greyson was actually peaceful and calm. I had gone into labor naturally exactly 1 week before my scheduled cesarean section and because I didn’t…
-
Travel Plans
Now that we have been back from South Carolina for a few days, I finally have a moment to post about our trip, and the days leading up to it. My family typically schedules our vacations far in advance, which worked out well in this instance, since I needed time to do some research about…
-
40% vs 1%
Today we headed down to Baltimore again for our genetic testing results and a neurology follow-up. Again, another early morning commute down I-83 aka the construction highway, to an appointment that we may or may not receive answers or recommendations from. I was exceptionally nervous today for the appointments. We have been waiting for genetic…
-
“2018: The Terrible, Horrible, No Good, Very Bad Year”
One of my favorite childhood books growing up, was Alexander and the Terrible, Horrible, No Good, Very Bad Day by Judith Viorst. The book (which was later adapted into a movie in 2014) revolved around a little ginger kid named Alexander that was having a pretty crappy day. I would force my mother into reading…
-
Halloween Mask
A few days late, but happy halloween! This year we kept on with the Star Wars theme and Greyson went as Chewbacca (he was Yoda last year). Despite having several costumes, and changing her mind daily, Roslynn decided to go as Vamperina. Halloween last year was fun, G only made it down the walkway at…
