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FALLing into Place
Wow. I can’t believe it’s October already! I truly don’t know what happened in August through now because I have been so ridiculously busy with so many things. In my last update, we had just gone to CHOP for a vascular anomaly appointment and had a biopsy of his Port-Wine Stain (PWS). Mid-August we finally…
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My Oh My, How Time Flies
I blinked and June was gone, so as we approach mid-July, I figured it was time to give an update. If you’ve been listening to Sip & Stim, you know a little bit about what’s been new in the lives of the Martins, but if you haven’t listened (which you should because we just finished…
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Hey Jealousy
I haven’t taken a vacation since 2022 and that vacation was cut short because I got COVID while we were there, and had to come back to PA due to how severe my symptoms were. Not many people know this, but I actually didn’t even want to go on that vacation because it was a…
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It’s March Already?!
I woke up this morning and realized- holy crap, it’s MARCH. The last time I posted was in November, which I swore I was going to be better at my posts, but I have been insanely busy with being the primary caregiver of Greyson, taking both kids to tons of appointments, keeping the family functioning,…
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You can deal with this, or you can deal with that
October left almost as soon as it came flying in. It’s really crazy to believe we are on the 11th month of 2025 already! The kids loved trick-or-treat night this year. We programmed Greyson’s communication tablet to say “Trick-or -Treat” and “Thank You”, which made everyone in the neighborhood so happy. He was really impressed…
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Happy Fall, Y’all!
It’s finally time for spooky season….AKA my favorite time of the year! I love when the mornings are crisp and the afternoons are warmer, only to end the evening with the fall chill in the air. Fall also brings colorful leaves, steamed apple cider and the best thing EVER invented- the pumpkin cream cheese muffin…
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Summer Lovin’ Had Me….Some Stress.
Time hates me. I am absolutely convinced. I got up this morning, completely believing that today was August and school was about to start in a short two weeks. Man was I wrong….. Seeing June on my calendar today was a sour punch to the gut of my reality bubble. Not only have we had…
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Titration
In February of 2022, Greyson had a VNS implant placed for his seizures. The device is implanted into his chest like a pacemaker, with a lead around his vagus nerve to tell his brain to stop seizing. This far, the device has helped a bit, successfully stopping several seizures since its placement. The problem with…
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Vaguna Nerve Stimulation- yes, you read that correctly
Sounds like something it’s not, but read the latest update and learn all about VNS therapy!
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DéjàVu
Déjà vu. If you’ve ever experienced this, you know that it can be extremely confusing and weird. I have had issues with déjà vu for as long as I can remember. I definitely feel like I get it a lot more often than most people. I always chalked it up to me just being really…
