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Titration
In February of 2022, Greyson had a VNS implant placed for his seizures. The device is implanted into his chest like a pacemaker, with a lead around his vagus nerve to tell his brain to stop seizing. This far, the device has helped a bit, successfully stopping several seizures since its placement. The problem with…
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School’s Out for Summer
It’s the time of year that most parents dread, especially parents of special needs children- Summer Break from school. June 6 was the last day of my sanity, when the kids were released from school for the summer. Roslynn was already set for summer since we signed her up for camp in Ephrata for 8…
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Birthdays, Babies and Breaks
Roslynn turns 8 years old on Memorial Day. Insane to think that this time 8 years ago, I was working full-time and believing that I had 6 weeks until my due date. Little did I know, I’d be giving birth a few days later. Many friends and family know the traumatic birth and aftermath of…
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This Is The Sick That Never Ends
Two things that make a parent’s ears bleed in the car: “Are we there yet?” and “This is the song that never ends”…..Well, I’m pretty sure that the only thing to make MY ears bleed, is “Mrs. Martin, this is (insert name here) from school. Greyson is sick and needs to be picked up, he’s…
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A Patch a Day, Keeps the Psychiatrist Busy
In the fall, Greyson was switched from a normal clonidine prescription, to an extended release dose. The pill had to be swallowed whole and would release the medications over the course of 24 hours. We thought that sounded great and that it would be a great change for Greyson, since the regular clonidine wasn’t really…
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Pickle Chips and Peppermints
Greyson has always been a difficult eater. I would say “picky”, but I know he likes (or has liked) a variety of foods in the past. Some of these foods include salt and vinegar chips, chicken nuggets and chocolate. Most recently, his food of choice has been Pickle chips (potato chips with pickle flavoring) and…
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The Devil’s Holiday
Halloween- also known as “All Hollow’s Eve”, “All Saint’s Eve” or “The Devil’s Holiday”, has many different traditions and meanings among people of faith, different religions and spiritualists. Though the traditions among different faiths and cultures may be drastically different, they all revolve around one main concept- honoring those who died before us. I’ve always…
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Screw You “22
Looking back at previous posts, I believe I stated that 2020 was the worst year ever. Many things come to mind when I think of 2020: losing my job, covid lockdowns, mom being diagnosed, just to name a few. I lied. The worst year ever is absolutely 2022. Starting the New Year off by burying…
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The Unexpected Beach Bum
If you have been following me on any sort of social media, you’d know that my family took our large vacation we typically do every other year, to Hilton Head Island, SC. We were able to celebrate Greyson turning 6 years old, even though he fell asleep before we could sing “Happy Birthday” to him.…
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VI
Well, we made it to 6! As of 5:03 PM, Greyson is officially 6 years old. He has grown so much this year- both physically and with skills he has developed. This time last year, we were still having frequent daily tantrums and severe self-injury. This year, he has learned how to use a communication…
