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“It’s Just Another Genetic Mutation”
Back in March, we took the kids for their first dental checkup of 2022. At the time, we knew Greyson had a single cavity on the bottom right side of his mouth, but due to his behavior in the office, he was scheduled to have his cavity filled at CHOP in an operating room. After…
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Lucky #7
The past four months have been a complete blur. Truthfully, 2022 in general has been a giant blur. I’ll probably paraphrase much of my life in this post, due to the fact that I can barely remember much that has happened. I will acknowlege that I basically lose my memory when I am stressed, or…
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Holy Spirit, Activate!
Tuesday, March 8th was Greyson’s VNS activation day. As I’ve said in previous posts, his VNS voltage level will be slowly increased over the next 12-16 weeks, until we are at a level that will work for him. The neurologist isn’t expecting us to really notice any change or improvement yet, since the device is…
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The Early Bird Gets The Implant…. (Or something like that)
Back when I was working in an office, I woke up at 4:15 am every single day. That gave me my “me” time each morning to shower, get ready, watch an episode of my favorite show and to purchase a coffee before my 7:30 am start time at the office. Now that I am working…
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V(NS) Day
Embracing chaos might be the journey we need to find peace.- Rachel Hollis
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(Greyson) With A Pearl Earring
We are finally all settled into our new house- almost every room in the house has been redone. We decided to take a break after the basement (now a home theatre/playroom) was complete, which was probably a good idea since Greyson’s epilepsy has been off the charts. After his appointment with the Neurologist in October,…
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Vaguna Nerve Stimulation- yes, you read that correctly
Sounds like something it’s not, but read the latest update and learn all about VNS therapy!
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New House, New School, New Med
There’s never a dull moment in the Martin household. It’s been awhile since I’ve posted- about 4 months to be exact. The summer was filled with complete chaos, packing an entire house, getting the kids set up with their new school, physically moving, remodeling and starting a new job. On top of all that, Greyson…
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Calm, Cool and Collected.
When I sit to write a post, I’m typically doing so while Greyson is napping, or in the middle of one of my insomnia episodes at 2 AM. I have had my fair share of insomnia episodes over the past month, I have not written a post. So much has happened over the past month,…
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DéjàVu
Déjà vu. If you’ve ever experienced this, you know that it can be extremely confusing and weird. I have had issues with déjà vu for as long as I can remember. I definitely feel like I get it a lot more often than most people. I always chalked it up to me just being really…
