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A Wish Come True
In the summer of 2020, we were nominated to have a wish granted from the Make-a-Wish foundation for Greyson. At first, we thought about maybe going on a trip, but with COVID and his seizures not being under control, we decided to askk for something that would last awhile. Greyson has a huge swingset at…
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Mr. Tickle
If you haven’t heard the story, Mr. Tickle by Roger Hargreaves, you are missing out. I absolutely love the Mr. Men book series, and this story in particular always reminds me of Greyson, since he absolutely loves tickles. Mr. Tickle also has a way of making everything completely inconvenient for others due to his love…
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The Rover and The Ice Storm
Back in early January, we saw the neurologist for a follow-up regarding Greyson’s seizures and severe headbanging. The doctor placed him on a new seizure medication routine and scheduled an MRI to check for any new damage or cause of migraines. We elected to have the MRI done in Philadelphia, at the CHOP main neurology…
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Slippery When Wet
Lancaster County saw it’s first significant snowfall in years, during the first week of February. I absolutely loathe the snow and don’t go out in it, unless I desperately have to. Because it’s been quite some time since it snowed enough to “play” in, Greyson had never felt snow before. About a foot of snow…
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New Year, Old Habits
I think it’s safe to say that everyone is happy that 2020 is finally over. With COVID-19, a tumultuous election season and so much going on in the world, 2021 has been warmly welcomed. 2020 was uneventful for Greyson and his medical concerns, up until the very end of November, when he began to have…
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A Change of Plans
The last time I have shared a post, was back in August. Since then, its felt like a year…..at least. Roslynn has been doing AMAZING in school! We knew that she was extremely smart, but the time it has taken her to grasp concepts (and retain them), has really surprised me. Because our school district’s…
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“Teacher Mommy”
So much has happened in the past two weeks, that it honestly feels like I haven’t given an update in months…. About ten days ago, the 2020-2021 school year was going to look a little like this- I would homeschool Roslynn for the first half of kindergarten, with guidance from the Penn Manor School District…
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Raincoat
For the past year or so, Greyson has seen a local pediatric dentist, who works for a practice that isn’t the greatest with a non-verbal, autistic toddler. We began seeking a new dentist for him back in the fall of 2019 and were referred to the Penn Medicine Dental Program in Philadelphia. They do many…
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Evaluation Day
Evaluation day in Baltimore for a diagnosis of Sturge-Weber Syndrome…..or was it? Follow us on our mini-trip down I-83 to Baltimore, MD where we receive some interesting news about Greyson’s condition.
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A “Dig-a-lay-lay” Birthday
Just a quick reflection of this past celebratory weekend…… If you’ve read my previous posts, you know that Derek and I are somewhat decent at deciphering Greyson’s vocal stims. For example, “Uh-DUHHHHHH” means he’s really mad and you should leave him alone and “dig-dig” is typically something funny (it’s turned into more of a “tig-tig”…
