-
The Waiting Game
I am notorious for being the most impatient person in the world. I have such a difficult time waiting for things that I know are important and need to get done. I have always been impatient, which negatively effected me throughout my school years. For example, I would be handed a test or an assignment…
-
Rush Hour
Never again will I EVER make an appointment in Baltimore after 3 PM. Also, never again will I EVER bring Roslynn along with us. As if Greyson’s crying for an hour wasn’t hard enough, Roslynn decided to give us a full-blown concert of nursery rhyme songs on the way home. Everything from “Mary had a…
-
Goodbye summer, hello fall.
November will mark one full year since we began our diagnosis journey. Though we are getting closer and have some pieces to the puzzle complete, there’s still a long way to go. Greyson has adjusted well to his doubled dose of meds, but we are still seeing seizure activity and even some mini-stroke episodes every…
-
May the power of M&M’s compel you!
The past couple of weeks have been fairly calm (knock on wood). Greyson is slowly, but surely adjusting to his higher dose of Trileptal and is responding well to it. He is still having strange tics and shakes, but hasn’t had any huge issues except for fussiness and headaches. Friday, September 7th, we had our…
-
Birthday Wish
My 28th year around the sun was eventful, to say the least. I never expected it to be my most difficult year yet. It has also been a year of teaching and learning. It recently dawned on me why my life has been moving in the direction it has been. Since I was in middle…
-
A Big Ass Magnet.
Yesterday was the day of Greyson’s functional MRI at John’s Hopkins in Baltimore. As previously discussed in my other posts, anytime we travel to Baltimore, I make sure G’s bag is packed the night before a d stocked with his favorite toys/books. This Friday was atypical- I went into work before heading down to JH,…
-
Side Effects
We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…
-
Another day, another diagnosis
Our day started at 4:00 this morning. Naturally, I was prepared last evening for an early departure today- diaper bag, car, medical records (in my giant binder, organized by tabs) and distraction toys for G were all packed. We left at 6:30 am, which was going to put us in the midst of rush-hour traffic…..on…
-
Rocky Balboa
My parents always fancied the Rocky movies while I was growing up, anytime they were on TV, they had to watch them. One can only hear “Adrian!” so many times…. Though the Martin family seems to favor Baltimore more than Philadelphia, Greyson reminds me a lot of Rocky Balboa. He often squinches up his face,…
-
Migraines
Today was the day of our (repeat) electroencephalogram appointment at Kennedy Krieger in Baltimore. I woke up at 4:00 am to get ready for a 6:45 am departure. Luckily, I packed the diaper bags and had the kids clothes laid out last night to make the morning run smoothly. We made it to Baltimore in…
