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Playing House
When I was younger, I loved playing house. I would go outside and play in our log cabin playhouse (it was huge and made out of real wood by our neighbor) for hours. The playhouse was the place to be on our block, the entire backyard made into a kid’s playground dream. We were extremely…
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Reflections of a Year: 2019
Skimming through my posts from 2019, I realized it was a lot more eventful than I thought. No wonder I’m exhausted every single day! Exactly one year ago, I was reminiscing about 2018, which was an awful year. Awful may actually be too nice. We lost several family members in 2018, and we continued to…
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King Size
Greyson has gone from 3 seizure meds, down to 2 in the past month. This transition has caused him to act out, become extremely impulsive, aggressive and nocturnal, though he doesn’t really sleep during the day either. Derek and I can deal with the lack of sleep, but the aggression is the worst of it.…
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“Uh-Duhhhhhhhh”!
Derek and I have begun to decipher Greyson’s vocal stims. Luckily, this informs us if he’s happy, sad, angry, or that a tantrum is about to start. He has 3 distinct sounds he typically makes: “Digdigdigdig a digdigdooo”- he’s happy and wants to play. “Duka duka duka takaduka”- he is getting upset or needs something.…
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A Bounce to Remember
Derek and I wanted to have a birthday party for Greyson, but had very little time to plan one. We searched around places in the Lancaster area that would host a small party (just immediate family), where Derek and I would have little responsibility to set up or clean up. We knew it would also…
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639/1095
Hard to believe that exactly three years ago, my amazingly special little boy was born. 5:03 pm, Greyson graced us with his tiny body and big personality. My birth experience with Greyson was actually peaceful and calm. I had gone into labor naturally exactly 1 week before my scheduled cesarean section and because I didn’t…
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Motherly Instinct
Whenever I get the chance to speak with other moms who have kids with special needs, I always ask if they knew something was different about their child while they were pregnant. The connection between mother and child, from the first heartbeat, is indescribable. Interesting enough, most mothers day no, that they didn’t feel that…
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Travel Plans
Now that we have been back from South Carolina for a few days, I finally have a moment to post about our trip, and the days leading up to it. My family typically schedules our vacations far in advance, which worked out well in this instance, since I needed time to do some research about…
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The Calm After the Storm
Remember when you were a kid and your school closed for a snow day, before going to bed? Not only was this instant bliss that no alarm was set, but you could sleep peacefully without worrying about school. The night before a school snow day was always my favorite. It was also the best time…
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40% vs 1%
Today we headed down to Baltimore again for our genetic testing results and a neurology follow-up. Again, another early morning commute down I-83 aka the construction highway, to an appointment that we may or may not receive answers or recommendations from. I was exceptionally nervous today for the appointments. We have been waiting for genetic…
