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DéjàVu
Déjà vu. If you’ve ever experienced this, you know that it can be extremely confusing and weird. I have had issues with déjà vu for as long as I can remember. I definitely feel like I get it a lot more often than most people. I always chalked it up to me just being really…
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Mr. Tickle
If you haven’t heard the story, Mr. Tickle by Roger Hargreaves, you are missing out. I absolutely love the Mr. Men book series, and this story in particular always reminds me of Greyson, since he absolutely loves tickles. Mr. Tickle also has a way of making everything completely inconvenient for others due to his love…
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A Change of Plans
The last time I have shared a post, was back in August. Since then, its felt like a year…..at least. Roslynn has been doing AMAZING in school! We knew that she was extremely smart, but the time it has taken her to grasp concepts (and retain them), has really surprised me. Because our school district’s…
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“Teacher Mommy”
So much has happened in the past two weeks, that it honestly feels like I haven’t given an update in months…. About ten days ago, the 2020-2021 school year was going to look a little like this- I would homeschool Roslynn for the first half of kindergarten, with guidance from the Penn Manor School District…
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Raincoat
For the past year or so, Greyson has seen a local pediatric dentist, who works for a practice that isn’t the greatest with a non-verbal, autistic toddler. We began seeking a new dentist for him back in the fall of 2019 and were referred to the Penn Medicine Dental Program in Philadelphia. They do many…
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Evaluation Day
Evaluation day in Baltimore for a diagnosis of Sturge-Weber Syndrome…..or was it? Follow us on our mini-trip down I-83 to Baltimore, MD where we receive some interesting news about Greyson’s condition.
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A “Dig-a-lay-lay” Birthday
Just a quick reflection of this past celebratory weekend…… If you’ve read my previous posts, you know that Derek and I are somewhat decent at deciphering Greyson’s vocal stims. For example, “Uh-DUHHHHHH” means he’s really mad and you should leave him alone and “dig-dig” is typically something funny (it’s turned into more of a “tig-tig”…
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Recharged
COVID-19 really messed up our ABA (Applied Behavior Analysis) services Greyson had been receiving for the past 2 1/2 years. Effective mid-March, the company we were using was told that they would be stopping all in-home services, including services provided by BCBA (Board Certified Behavior Analyst) and RBT (Registered Behavior Technician) providers. Greyson’s primary insurance…
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Helmet
In the spring of 2018, Greyson was written a prescription for a fitted medical-grade helmet, to keep his head safe from the headbanging he does. In 2018, his headbanging was minimal- typically only when he was mad or upset about something and it didn’t last very long. Fast forward to December 2019 and his minimal…
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I Get High With a Little Help From My……Parents?
A fair warning before anyone reads this post: Whether you agree or disagree with medical marijuana, don’t believe in it, swear by it or are not educated in it, I do not care. This post is therefore not a lecture, recommendation or meant to sway one’s opinion in either way. This is strictly our family’s…
