-
A Patch a Day, Keeps the Psychiatrist Busy
In the fall, Greyson was switched from a normal clonidine prescription, to an extended release dose. The pill had to be swallowed whole and would release the medications over the course of 24 hours. We thought that sounded great and that it would be a great change for Greyson, since the regular clonidine wasn’t really…
-
Pickle Chips and Peppermints
Greyson has always been a difficult eater. I would say “picky”, but I know he likes (or has liked) a variety of foods in the past. Some of these foods include salt and vinegar chips, chicken nuggets and chocolate. Most recently, his food of choice has been Pickle chips (potato chips with pickle flavoring) and…
-
The Devil’s Holiday
Halloween- also known as “All Hollow’s Eve”, “All Saint’s Eve” or “The Devil’s Holiday”, has many different traditions and meanings among people of faith, different religions and spiritualists. Though the traditions among different faiths and cultures may be drastically different, they all revolve around one main concept- honoring those who died before us. I’ve always…
-
“It’s Just Another Genetic Mutation”
Back in March, we took the kids for their first dental checkup of 2022. At the time, we knew Greyson had a single cavity on the bottom right side of his mouth, but due to his behavior in the office, he was scheduled to have his cavity filled at CHOP in an operating room. After…
-
Lucky #7
The past four months have been a complete blur. Truthfully, 2022 in general has been a giant blur. I’ll probably paraphrase much of my life in this post, due to the fact that I can barely remember much that has happened. I will acknowlege that I basically lose my memory when I am stressed, or…
-
Holy Spirit, Activate!
Tuesday, March 8th was Greyson’s VNS activation day. As I’ve said in previous posts, his VNS voltage level will be slowly increased over the next 12-16 weeks, until we are at a level that will work for him. The neurologist isn’t expecting us to really notice any change or improvement yet, since the device is…
-
V(NS) Day
Embracing chaos might be the journey we need to find peace.- Rachel Hollis
-
Vaguna Nerve Stimulation- yes, you read that correctly
Sounds like something it’s not, but read the latest update and learn all about VNS therapy!
-
New House, New School, New Med
There’s never a dull moment in the Martin household. It’s been awhile since I’ve posted- about 4 months to be exact. The summer was filled with complete chaos, packing an entire house, getting the kids set up with their new school, physically moving, remodeling and starting a new job. On top of all that, Greyson…
-
Calm, Cool and Collected.
When I sit to write a post, I’m typically doing so while Greyson is napping, or in the middle of one of my insomnia episodes at 2 AM. I have had my fair share of insomnia episodes over the past month, I have not written a post. So much has happened over the past month,…
