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Titration
In February of 2022, Greyson had a VNS implant placed for his seizures. The device is implanted into his chest like a pacemaker, with a lead around his vagus nerve to tell his brain to stop seizing. This far, the device has helped a bit, successfully stopping several seizures since its placement. The problem with…
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School’s Out for Summer
It’s the time of year that most parents dread, especially parents of special needs children- Summer Break from school. June 6 was the last day of my sanity, when the kids were released from school for the summer. Roslynn was already set for summer since we signed her up for camp in Ephrata for 8…
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Birthdays, Babies and Breaks
Roslynn turns 8 years old on Memorial Day. Insane to think that this time 8 years ago, I was working full-time and believing that I had 6 weeks until my due date. Little did I know, I’d be giving birth a few days later. Many friends and family know the traumatic birth and aftermath of…
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This Is The Sick That Never Ends
Two things that make a parent’s ears bleed in the car: “Are we there yet?” and “This is the song that never ends”…..Well, I’m pretty sure that the only thing to make MY ears bleed, is “Mrs. Martin, this is (insert name here) from school. Greyson is sick and needs to be picked up, he’s…
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A Patch a Day, Keeps the Psychiatrist Busy
In the fall, Greyson was switched from a normal clonidine prescription, to an extended release dose. The pill had to be swallowed whole and would release the medications over the course of 24 hours. We thought that sounded great and that it would be a great change for Greyson, since the regular clonidine wasn’t really…
