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Goodbye summer, hello fall.
November will mark one full year since we began our diagnosis journey. Though we are getting closer and have some pieces to the puzzle complete, there’s still a long way to go. Greyson has adjusted well to his doubled dose of meds, but we are still seeing seizure activity and even some mini-stroke episodes every…
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Side Effects
We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…
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A tic or not a tic….that is the question.
About a month ago, Greyson began doing a strange flopping behavior where his upper body goes completely limp and he does a little twitchy jerking motion. In the above video right around 9 seconds, you can see G approach the cube bookcase and go limp, then jerk around. If you missed the movement in the…
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Dear World,
I see you staring at me. I feel your judgmental eyes looking at me in the grocery store, the park and at the doctor’s office. I know you see the tears in my eyes as I am running after my child, who is throwing himself around on the floor and screaming. I understand why you…
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You win none, you lose many.
Whether or not you have a child, spouse, significant other, etc., I think anyone can relate to this post. We all know the saying, “You win some, you lose some”, but my twist on this is, “You win none and you lose many.” Naturally I’m talking about friends. We all (hopefully) have them, and any…
