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The Waiting Game
I am notorious for being the most impatient person in the world. I have such a difficult time waiting for things that I know are important and need to get done. I have always been impatient, which negatively effected me throughout my school years. For example, I would be handed a test or an assignment…
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Rush Hour
Never again will I EVER make an appointment in Baltimore after 3 PM. Also, never again will I EVER bring Roslynn along with us. As if Greyson’s crying for an hour wasn’t hard enough, Roslynn decided to give us a full-blown concert of nursery rhyme songs on the way home. Everything from “Mary had a…
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Goodbye summer, hello fall.
November will mark one full year since we began our diagnosis journey. Though we are getting closer and have some pieces to the puzzle complete, there’s still a long way to go. Greyson has adjusted well to his doubled dose of meds, but we are still seeing seizure activity and even some mini-stroke episodes every…
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Side Effects
We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…
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A tic or not a tic….that is the question.
About a month ago, Greyson began doing a strange flopping behavior where his upper body goes completely limp and he does a little twitchy jerking motion. In the above video right around 9 seconds, you can see G approach the cube bookcase and go limp, then jerk around. If you missed the movement in the…
