Ready for Christmas morning! In the fall, Greyson was switched from a normal clonidine prescription, to an extended release dose. The pill had to be swallowed whole and would release the medications over the course of 24 hours. We thought that sounded great and that it would be a great change for Greyson, since the... Continue Reading →
The Unexpected Beach Bum
If you have been following me on any sort of social media, you'd know that my family took our large vacation we typically do every other year, to Hilton Head Island, SC. We were able to celebrate Greyson turning 6 years old, even though he fell asleep before we could sing "Happy Birthday" to him.... Continue Reading →
Well, we made it to 6! As of 5:03 PM, Greyson is officially 6 years old. He has grown so much this year- both physically and with skills he has developed. This time last year, we were still having frequent daily tantrums and severe self-injury. This year, he has learned how to use a communication... Continue Reading →
“It’s Just Another Genetic Mutation”
Before the 🦷 came out! Back in March, we took the kids for their first dental checkup of 2022. At the time, we knew Greyson had a single cavity on the bottom right side of his mouth, but due to his behavior in the office, he was scheduled to have his cavity filled at CHOP... Continue Reading →
Holy Spirit, Activate!
https://youtu.be/oGrTRVSt1Tc In case you’ve been living under a rock and don’t get the title of the post Tuesday, March 8th was Greyson’s VNS activation day. As I’ve said in previous posts, his VNS voltage level will be slowly increased over the next 12-16 weeks, until we are at a level that will work for him.... Continue Reading →