Well, we made it to 6! As of 5:03 PM, Greyson is officially 6 years old. He has grown so much this year- both physically and with skills he has developed. This time last year, we were still having frequent daily tantrums and severe self-injury. This year, he has learned how to use a communication... Continue Reading →
“It’s Just Another Genetic Mutation”
Before the 🦷 came out! Back in March, we took the kids for their first dental checkup of 2022. At the time, we knew Greyson had a single cavity on the bottom right side of his mouth, but due to his behavior in the office, he was scheduled to have his cavity filled at CHOP... Continue Reading →
The past four months have been a complete blur. Truthfully, 2022 in general has been a giant blur. I'll probably paraphrase much of my life in this post, due to the fact that I can barely remember much that has happened. I will acknowlege that I basically lose my memory when I am stressed, or... Continue Reading →
Holy Spirit, Activate!
https://youtu.be/oGrTRVSt1Tc In case you’ve been living under a rock and don’t get the title of the post Tuesday, March 8th was Greyson’s VNS activation day. As I’ve said in previous posts, his VNS voltage level will be slowly increased over the next 12-16 weeks, until we are at a level that will work for him.... Continue Reading →
The Early Bird Gets The Implant…. (Or something like that)
Back when I was working in an office, I woke up at 4:15 am every single day. That gave me my "me" time each morning to shower, get ready, watch an episode of my favorite show and to purchase a coffee before my 7:30 am start time at the office. Now that I am working... Continue Reading →