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Goodbye summer, hello fall.
November will mark one full year since we began our diagnosis journey. Though we are getting closer and have some pieces to the puzzle complete, there’s still a long way to go. Greyson has adjusted well to his doubled dose of meds, but we are still seeing seizure activity and even some mini-stroke episodes every…
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May the power of M&M’s compel you!
The past couple of weeks have been fairly calm (knock on wood). Greyson is slowly, but surely adjusting to his higher dose of Trileptal and is responding well to it. He is still having strange tics and shakes, but hasn’t had any huge issues except for fussiness and headaches. Friday, September 7th, we had our…
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Birthday Wish
My 28th year around the sun was eventful, to say the least. I never expected it to be my most difficult year yet. It has also been a year of teaching and learning. It recently dawned on me why my life has been moving in the direction it has been. Since I was in middle…
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A Big Ass Magnet.
Yesterday was the day of Greyson’s functional MRI at John’s Hopkins in Baltimore. As previously discussed in my other posts, anytime we travel to Baltimore, I make sure G’s bag is packed the night before a d stocked with his favorite toys/books. This Friday was atypical- I went into work before heading down to JH,…
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Side Effects
We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…
La Vie De Autism 