Category: Reality

  • A Big Ass Magnet.

    Yesterday was the day of Greyson’s functional MRI at John’s Hopkins in Baltimore. As previously discussed in my other posts, anytime we travel to Baltimore, I make sure G’s bag is packed the night before a d stocked with his favorite toys/books. This Friday was atypical- I went into work before heading down to JH,…

  • Side Effects

    We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…

  • Another day, another diagnosis

    Our day started at 4:00 this morning. Naturally, I was prepared last evening for an early departure today- diaper bag, car, medical records (in my giant binder, organized by tabs) and distraction toys for G were all packed. We left at 6:30 am, which was going to put us in the midst of rush-hour traffic…..on…

  • Rocky Balboa

    My parents always fancied the Rocky movies while I was growing up, anytime they were on TV, they had to watch them. One can only hear “Adrian!” so many times…. Though the Martin family seems to favor Baltimore more than Philadelphia, Greyson reminds me a lot of Rocky Balboa. He often squinches up his face,…

  • Migraines

    Today was the day of our (repeat) electroencephalogram appointment at Kennedy Krieger in Baltimore. I woke up at 4:00 am to get ready for a 6:45 am departure. Luckily, I packed the diaper bags and had the kids clothes laid out last night to make the morning run smoothly. We made it to Baltimore in…