Category: Reality

  • May the power of M&M’s compel you!

    The past couple of weeks have been fairly calm (knock on wood). Greyson is slowly, but surely adjusting to his higher dose of Trileptal and is responding well to it. He is still having strange tics and shakes, but hasn’t had any huge issues except for fussiness and headaches. Friday, September 7th, we had our…

  • Birthday Wish

    My 28th year around the sun was eventful, to say the least. I never expected it to be my most difficult year yet. It has also been a year of teaching and learning. It recently dawned on me why my life has been moving in the direction it has been. Since I was in middle…

  • A Big Ass Magnet.

    Yesterday was the day of Greyson’s functional MRI at John’s Hopkins in Baltimore. As previously discussed in my other posts, anytime we travel to Baltimore, I make sure G’s bag is packed the night before a d stocked with his favorite toys/books. This Friday was atypical- I went into work before heading down to JH,…

  • Side Effects

    We started Greyson on his anticonvulsant, Trileptal on Friday evening. Saturday morning, we gave him the second dose 12 hours after, as directed. Derek and I did not notice any changes Friday, but Saturday morning we experienced a strange side effect from the medicine. Greyson seemed to have lost the feeling/control in his legs, stumbling…

  • Another day, another diagnosis

    Our day started at 4:00 this morning. Naturally, I was prepared last evening for an early departure today- diaper bag, car, medical records (in my giant binder, organized by tabs) and distraction toys for G were all packed. We left at 6:30 am, which was going to put us in the midst of rush-hour traffic…..on…