Category: Family

  • Goodbye summer, hello fall.

    November will mark one full year since we began our diagnosis journey. Though we are getting closer and have some pieces to the puzzle complete, there’s still a long way to go. Greyson has adjusted well to his doubled dose of meds, but we are still seeing seizure activity and even some mini-stroke episodes every…

  • A tic or not a tic….that is the question.

    About a month ago, Greyson began doing a strange flopping behavior where his upper body goes completely limp and he does a little twitchy jerking motion. In the above video right around 9 seconds, you can see G approach the cube bookcase and go limp, then jerk around. If you missed the movement in the…

  • Dear World,

    I see you staring at me. I feel your judgmental eyes looking at me in the grocery store, the park and at the doctor’s office. I know you see the tears in my eyes as I am running after my child, who is throwing himself around on the floor and screaming. I understand why you…

  • You win none, you lose many.

    Whether or not you have a child, spouse, significant other, etc., I think anyone can relate to this post. We all know the saying, “You win some, you lose some”, but my twist on this is, “You win none and you lose many.” Naturally I’m talking about friends. We all (hopefully) have them, and any…

  • Mr. Derek Martin

    Many people that know me, know that I am a firm believer in the saying, whatever happens, happens. In October 2011, I was hired to be a soprano in the choir at Bethany Presbyterian Church in Lancaster City. Unbeknownst to me, the church was a short walk from my parents house, and shared a parking…