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Dear World,
I see you staring at me. I feel your judgmental eyes looking at me in the grocery store, the park and at the doctor’s office. I know you see the tears in my eyes as I am running after my child, who is throwing himself around on the floor and screaming. I understand why you…
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You win none, you lose many.
Whether or not you have a child, spouse, significant other, etc., I think anyone can relate to this post. We all know the saying, “You win some, you lose some”, but my twist on this is, “You win none and you lose many.” Naturally I’m talking about friends. We all (hopefully) have them, and any…
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I saw the sign
I used to loathe Ace of Base. My sister Amanda used to play the CD on repeat and it drove me crazy. I was always more of a Spice Girls kind of kid. I would set up my parent’s front porch as the stage and forced everyone to sit in chairs on the front lawn,…
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May showers bring……May tantrums?
May brought us a Physical Therapy evaluation at Schreiber Pediatric Rehab Center in Lancaster, the start of our in-home ABA Services and a consultation for bilateral tubes in Greyson’s ears. The evaluation for PT did not go well. Greyson refused to cooperate with any of the tasks that the evaluator presented him with. After about…
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Good Morning, Baltimore.
The morning of April 27th 2018 began at 3:45 am for Derek and I. I had a difficult night tossing and turning, anxious about what the doctors could possibly say or recommend at our appointments that day. The wonderful thing about the Hunter Nelson Sturge-Weber Syndrome clinic at Kennedy Krieger, was that the program coordinator…
